December 2011
9 posts
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New URL!
I changed it to “Iwillbringhealthandhealing.”
This is inspired by Jeremiah 33:6 - “Behold, I will bring it health and healing; I will heal them and reveal to them the abundance of peace and truth.”
I am fortunate enough that I found a medication that works, and I wanted a URL that reflected that.
This was my early Christmas present, and it was the best one that I could...
immafreakngleek asked: 26
mirandamarie asked: I'm an almost-20 college student with RA. It's been 9 years since I was diagnosed. I can't imagine dealing with both RA and fibromyalgia... your courage and strength inspire me! I've been blessed to improve dramatically since my diagnosis thanks to a mix of meds and a great doc, so there is definitely hope. Just wanted to let you know that I'll be praying for you, and that...
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I'm starting to get scared.
Today, I got up early (for a college weekend), did homework for a couple of hours, cleaned everything, and went to see my friends’ choir concert. I was chatting with some after, and talking about this new treatment. As we were talking, I mentioned that I’m starting to notice that I feel real happiness more and am faking happiness less. This is one of the things that is making my think...
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Family Mottos
Mum’s side (the Irish folk): Wisdom is Lord and Master
Daddy’s side (the Scots-Irish folk): Yes, push on
Aka,
Be smart and obey intelligence
Keep on keepin’ on
dreamsbeyondthesea asked: Hi my name is Tyra. I just found your blog and I can't believe you're so young and you have fibromyalgia, my grandmother has it and she means the world to me. Most of the time she is in pain and all I could do is pray for her and give her massages. I've heard that there's no cure but we're doing our best to try to make her feel better. I wish you the best and don't...
realhoneybadger asked: I discovered your blog! I'm a 20 year old DG as well. One of my Littles has arthritis and fibromyalgia too, so I both understand and empathize with all that you're going through. TDH newly discovered sister!
livinnnbig asked: 24 ?
love-is-a-puzzle asked: 15 ~ What are your career goals??
November 2011
31 posts
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ow. ow. ow.
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Dear Campbells,
Thanks for putting wheat and dairy in your soup. I was hoping to just get a very bland soup because I’m so nauseous, but I guess pain works, too.
Hatefully yours,
Kate
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Dear TSA,
I hope you enjoyed searching my bag today.
I hope you don’t think that I’m a druggy now because of the pills, narcotics, and needles.
Love,
Kate
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Most successful rheumatology appointment I've had...
First rheumatology appointment ever in which I did not cry.
Let me clarify, though: it was so successful because it was neutral with a dose of “cautious optimism.” It’s still a little too early to tell if this therapy is working, but it’s not not working as of right now.
Basically, I should have been bedridden/dead from pain yesterday due to all the stressors (flying,...
If you have no idea that I’m freaking out over this Vandy game, then you’re clearly not following my main distraction from this chronic pain bs.
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Watching Psych right now, and I'm actually getting...
A character/murder suspect has severe arthritis in one hand, and can’t open his hand.
His lawyer said “He mentioned something about it, but I never thought much of it. He always complained a lot.”
That is the kind of attitude that makes me so angry and is the reason why I speak out so much about my personal experiences. That kind of attitude can make a huge difference in...
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Legitimate goal for the day: no trip to the ER
Too bad I’m off on a mandatory class field trip.
death and destruction <- how I feel
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Pain has an element of blank;
It cannot recollect
When it began, or if there were
A day when it was not.
It has no future but itself,
Its infinite realms contain
Its past, enlightened to perceive
New period of pain.
- Emily Dickinson
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“Why is my pain continuous, my wound incurable, refusing to be healed?”
– Jeremiah 15:18
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Realization of the night . . .
I take 16 or 17 (depending on the day) pills a day.
And I take 4 multivitamins (chewable gummies) a day.
And I do an injection once a week, which is equal to 10 pills.
This mean, counting multivitamins, I take 20-21 “pills” a day, and on Sundays I take the equivalent of 30 pills.
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This medication really needs to work. Seriously.
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You know you have arthritis when
carrying your laundry results in swollen joints - and that’s before you even do your laundry
motherclam asked: Your theme is absolutely gorgeous.
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Daddy visited today!!
Just an awesome afternoon. It was so gorgeous, and I had my work done that’s due tomorrow, so I had all afternoon free. We sat outside and drank coffee, checked out the new bookstore, picked up some things so I could finish organizing my new room, and went to dinner at Loveless.
Such a truly wonderful afternoon! Feeling so blessed.
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Me: Yay bedtime! I'm going to sleep!
My body: JOKES no sleep for you! Here, have some pain instead! You can have some pain, and you can have some pain, every part of you gets some pain! PAIN FOR EVERYTHING!
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rosesfrommyfriends:
When your skin is sensitive, your skeleton feels heavy and your muscles feel like they’re ripping out and it all builds until - Everything just hurts, it makes me so goddamn frustrated…
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I'm trying this new thing where for every bad...
For example:
“omg so much pain it’s like the air is hurting me” BUT “I am thankful for my great friends who help me walk home”
“everything everything everything hurts” BUT “I am thankful that my doctor gave me pain medication that helps some”
“I feel like death blehhh pain aasdfhoihoiasdhfoj” BUT “I am grateful that I get...
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I am thankful that
I only have to do this injection once a week. There are so many people who have to do injections ever day.
I at least have some sort of medication to take.
I have the health insurance that covers my medications.
my doctors are trying to help me and know what is wrong with me.
I have physical therapy tomorrow.
there is coffee in the world.
Anonymous asked: Sorry you aren't feeling great. I am a huge fan of your style blog. What does of mtx are you on? I just got upped by a pill a week and it's making a huge difference (in terms of more symptoms). Blech.
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Good and bad stuff
Good: bloodwork was fine and I’m on double the dose of the new stuff that I was
Bad: the side effects are awful
asdfhlikadfhoih ugggg
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I really wish that I hadn’t taken the MTX after all. Side effects were horrific yesterday. I mean they were wicked bad. Awful.
Bleh.
Happy 1st of November! Enjoy All Saints Day!
October 2011
92 posts
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Confession:
I almost didn’t take my MTX today. On purpose. I hate it, I hate how it makes me feel, and I hate doing the injection. So I made the conscious decision to not take it this week.
And then I changed my mind, because I knew that I had to take it.
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I’m liking my new room. Lots and lots of bookshelf space!
Also, I’ve been looking at my cookbooks again. So looking forward to getting back to cooking.
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Moved!
Exhausted. Stuff is in the room, but not all put away yet.
I’m so incredibly exhausted, and I hardly did anything. I am SO thankful for my wonderful, amazing friends who helped me today. I’ll be baking for them to thank them (once I’m feeling up to it, of course), but I can’t explain how grateful I am for all they’ve done for me. If they hadn’t helped me,...
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If teaching doesn't work out
I’m going to see about meteorology because my joints basically make me a barometer.
Somebody changed the channel back to loads of pain. That somebody was Mother Nature.
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I had 2 "relatively good/okay" days!!
Monday and Tuesday my pain was lower than it’s been in awhile. It was so exciting! But it was also wicked exhausting, because that meant I was able to go to all of my classes for the entire time without any pain meds. And I was able to do homework and I could go to Bible study. So excited.
Speaking of which, I’m loving the book my Bible study group is reading. Yay God!
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Bleh arthritis whyy
my right hand is literally twice the size of my left today. ALL of my knuckles on that hand are red and swollen. As in, I didn’t even notice that they were swollen at first because every part of that hand is swollen and it wasn’t until I held it up next to my left hand that I noticed it.
This is getting ridiculous.